US politics - the new orange wave (Part 7)

LOL

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That would be a first

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Just wait til one of his headshot followers tells him vaccines cause autism

Maybe start with chronic illnesses and obscure diseases for which there are cures or medication, but affordable only by the wealthy.
Australia for instance has an orphan drugs program for rare diseases, under which the government subsidises delivery of drugs which otherwise would not be profitable to market. Delivery is facilitated by the existence of universal Medicare and the PBS system. ( Some of the orphan drugs have been developed in the US through government subsidised research).

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I dunno, that sounds pretty commie to me.

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I have a chronic illness. No known cause and 95% donā€™t work because of it. But itā€™s rare and there has been little research into it. A cure wonā€™t be profitable. Investment in NHI not pharmaceutical companies is the way to go.

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Iā€™ve got a lot of issues with Trump. Heā€™s not my guy but on this topic heā€™s on a winner and this is a deep dive many of us living with various illnesses can only benefit from.

Understanding the cause of chronic illness and treating this, rather than just dealing with symptom treatment is absolutely the way forward. Not only helping patients but taking pressure off the public medical system.

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But some medications are available for management of incurable diseases and/or genetic disabilities, enabling people to become part of the workforce and to participate in society , supported by the NDIS.
Itā€™s not perfect, but weā€™re not starting from scratch, including with government subsidised research on disease prevention and management.

I have a vested interest in this, I have a chronic condition. Have managed it for 15 years. I know first hand how the system neglects many with these conditions and it starts with a lack of desire to understand whatā€™s causing the illness and treating the cause. Getting in the way of this are vested interests, big pharma, the medical profession and governments to a degree. Many patients are left hanging in the breeze to wither away.

The determined and wealthy (in some instances) find solutions and paths out of their medical malaise, the majority sadly are left to deteriorate.

Any effort to address the barriers to understanding whatā€™s driving chronic illness, and treating it effectively is a good thing. Irrespective of who is behind itā€¦

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Itā€™s a bit of a pile-on, which to some might seem overly negative for a proposal that on the surface seems like a good thing.

There really are many problems with it, though. One thing that hasnā€™t been mentioned is that a lot of the information that a proposal like this is seeking to find is already there.
Provided by departments that many suspect will be slashed to the bone under Trump.

It is no shock to anyone that US food is loaded with sugar compared to the similar products anywhere else.
That portion sizes are ridiculous.

And the same goes for environmental impacts from mining and manufacturing. From pollution.
Itā€™s not like this stuff hasnā€™t been studied and reports havenā€™t been given to government.
It has. They were.

Given that, and given Trump and the Republicanā€™s attitude to these things, let alone the antagonism from the US general public about any new woke restrictions and bans that are supposed to be ā€˜good for usā€™ (thatā€™s what theyā€™re telling you)ā€¦

Youā€™ll forgive people for thinking the result of this investigation will be some weird-ass stuff that ignores science, does nothing to address the problem, conveniently demonises political opponents, and protects massive companies with massive political donations.

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Iā€™ve often read about your story and have felt for you as I can understand what youā€™re dealing with :slightly_smiling_face:

Iā€™m a big believer in the need to understand whatā€™s causing chronic illness and treating that. Iā€™m fortunate that Iā€™ve been able to find terrific practitioners who think outside the square and whoā€™ve helped enormously. Empowering my knowledge of illness and also treating.

Itā€™s not necessarily about cures. Itā€™s more about managing whatā€™s driving illness (inflammation) and having the right treatment plans to deal with that. Ultimately however, the ā€˜systemā€™ is not overly interested in complex illness. As you say, itā€™s not profitable, practitioners donā€™t have time and itā€™s a difficult area that requires lots of follow up.

At least we might (?!) have the USA shining a light on the challenges preventing successful management of chronic disease which might potentially lead to new pathways for patients dealing with them.

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Mine arenā€™t covered by PBS so unless youā€™re earning a good salary you canā€™t afford it.

The more we can do to minimise pain and manage disease/disability to allow people to live their best life the better.

Heā€™s not gonna do this.

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The WHO provides the architecture and structure for global health cooperation, in which the US has been a shining light and where it can maximise its international influence without undue cost ( with some revenue from WHO purchases of US drugs and treatments).
In the early days, Trump threatened to withdraw from the WHO - sovereignty stuff- but subsequently restored funding.
Letā€™s see how it goes this time round. Maybe Trump has learned that international institutions serve to maintain Americaā€™s strength and international security.

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Heā€™s lying. He lies, and he grifts and he wonā€™t change. What bizarre gymnastics are going on here to get from Trump making vague, impossible claims, to people in Australia with health conditions benefitting from his second presidency? Bizarro world pt2, here we go. Good grief.

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THIS TIME WILL BE DIFFERENT

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We do have the cut in , where annual prescription expenditure (PBS and other) hit a ceiling. Itā€™s not means tested.

Still beleive that Trump does what he promises? His amensia has already kicked in.

With respect, people battling the barriers to effectively treating and changing the way chronic illness is viewed and managed isnā€™t going to be solved by the WHO. The WHO are as conflicted and its work as compromised as any current spoke in the system.

Iā€™m talking about how patients with conditions like MS, Diabetes, Parkinsonā€™s, Lyme Disease, CFS etc.

No. And Trump may not make the necessary headway. But the right starting point is to call out the limitations of the system as it currently stands and make some (any) effort to change how the system operates and break up the vested interests preventing the care of patients. Any movement whatsoever in this direction is progression and is a good thing for patients at the very least.